Living in Harmony…

I wonder how it will change with our new “rights ” being bandied about in Congress these days. It took 3 days just to get the nurse on the phone to change the medicine they’d be trying . It was making my stomach into a place of nightmares. That turned into a week, to make the change which flared my fibromyalgia from the lag time. Good news: the newest medicine is helping my pain of IBS, I can take deep breaths again! The fibro is still flaring though, too many things happening at one time; meds, Spring, fevers….it’ll settle down, it just takes time. And patience, something that I get short of at times. I know these things are just thorns, they will work themselves out as do all thorny afflictions, but it’s hard going sometimes, waiting.

Again , the new health policy being shoved  at us will be an ugly life to get to used to. My care has been one of real help to me. I wonder where it will go now? Will I be the one told to take the medicine to feel more comfortable and not worry over the condition of my liver…after all I’ve lived a pretty good life(even though someone’s arrogance and lack of study has stolen the last 14 years of health from me?).

Sorry , my strength has been somewhat sapped from all this and I long to see my daughter and her family. I cannot travel without the energy getting the energy back has been an elusive treasure thus far. I guess this tired felling is downing me, so I’ll close for now. As always dear friends my journey continues and the path is not always so rough. Papa holds me upright and helps me over each stone. I’ll write again soon, keep reading…

I did see the new doctor, and it was decided no procedure just now. We all agreed that what was done years ago is sufficient and what I was experiencing was nerve problem. Not nervous…actual nerve endings in the areas of my surgeries and liver are on standing at attention and making me HURT!!!

Soooooooooo, we are 3 weeks into an experiment with a medication that theoretically soothes the nerve endings. It does seem to be helping as I can breathe without much pain. That’s a good thing! I believe the antioxidants and the walking that I’m doing several times a week are helping to bring down the size of my liver. Did you know how easily you can walk a mile at Costco? And the outlet malls help too…flat, nice sidewalks with a well-placed bench when needed. As always the constant fatigue is my enemy, I just don’t have the “get up and go” to do a lot in a day. My blood levels are pretty well balanced just now, so it appears until chronic fatigue syndrome is remedied, I’ll be droopy.

This cold sure doesn’t help, but there’s no money for a Florida visit just now. All our sights are on Bruce getting another job. He has his business here at home that occupies his mind (Thanks, God) but rich it will never make us. Especially when the company that he sometimes does contract work for seems to think Pittsburgh is next to Erie, which is just next to Buffalo, and would like that job done by this afternoon! Don’t these people know how to Google a map? Oh no grousing…Bruce loves to do the work, computers just seem to speak the same way his mind works. His web pages are tremendous works of ingenuity and art, the customers really seem to like his work and recommend him all around.

I s’pose that that’s the catch up on me.  My 2 bigger GRANDS aged up in February, so now I’m the proud Nana of a 6  & 13 Y/O! Life at Anne’s is kept very interesting, but she handles it like the pro she is,and even keeps the school lessons going. Even the littlest one has joined in, at 20 months Ben & Ava are learning at leaps and bounds. Ava is looking pretty interested in The Potty Dance, Pull-ups will be the dress of the day in the coming months. Ben, well…more interesting boy stuff to do just now;) I’ll keep you updated as the kids set new goals for themselves, it’ll be an interesting Spring.

Keep watching…